Dementia Web - Dementia Information Resource for Kent and Medway

DementiaWeb - Dementia Information Resource for Kent and Medway



Who Can I Talk To?

24 Hour Dementia Helpline - 0800 500 3014

When you first hear the word ‘dementia’, it can stir up a wide variety of emotions. These can range from being scared, worried, isolated and confused. These emotions can make you feel depressed, anxious and panicky. You may not know what will happen next or where to go to for help and advice.

If you are a person who has dementia, or you are a family member, a friend or a carer and are worried about the condition, we have a 24 hour a day helpline to help you.

The 24 hour dementia helpline offers a telephone service where your calls are taken by qualified staff. All calls are treated with the highest of confidentiality and callers need not give their name if they wish.

If you have concerns about Alzheimer's disease or about any other form of dementia, the 24 hour dementia helpline can provide emotional support and information on different services and support that you can access.


24 Hour Dementia Helpline - 0800 500 3014


Need Someone to Talk To?

When you are caring for someone who has dementia, there may be times when you feel you need someone to talk to. This may be because you need advice about something, or simply that you just need a listening ear from somebody who understands your situation.

Anyone who provides, or intends to provide, a substantial amount of care on a regular basis has a right to a Carer's Assessment. Kent Adult Social Services (KASS) role is to ensure that carers are supported and have access to information, practical assistance, emotional support and help to maintain their own health. Please contact Kent Contact Assessment Service (KCAS) for further information on the Carers Assessment:

KCAS
Kroner House
Eurogate Business Park
Ashford
TN24 8XU
Tel: 08458 247100 (Text phone is 08458 247905)

Email: contact.assessment.service@kent.gov.uk

For ease of reference we have divided the information on this page into three groups: online support first, then local contacts, with national helplines further down the page.

Online Support

The Alzheimer's Talking Point is an online discussion forum that provides support for people with dementia and their carers, by allowing you to 'chat' over the internet with other people who understand what it's like for you.

Local Contacts

Carers Support

There are Carers organisations operating across Kent and Medway.

They can visit you at home, speak to you on the telephone, or meet at a mutually convenient venue.

They are there just for you, to listen to you, and perhaps offer some practical solutions to some of the situations you encounter.

Further information on can be found on our Local Support and Services page.

Alzheimer's Society Support Workers

The Alzheimer's Society local branches have specialist Support Workers, who are familiar with the challenges dementia brings. They can help you access information you may need, as well as providing an understanding ear when you need someone to talk to.

For further information and local branches in your area please go to the Alzheimer’s Society’s website.

Support Groups

A number of support groups exist, in and around Kent and Medway, that enable carers and family members of people with dementia to meet and talk to other people who know what it's like for them.

Alzheimer's and Dementia Support Services (ADSS)

ADSS support groups provide a sociable environment for both carers and those they care for. Social events are arranged throughout the year and carers have the opportunity to gain support through the shared experience of others.

ADSS currently have 3 support groups based in Dartford, Gravesend and Meopham. Press Release.

For further information please contact:

Alzheimer's and Dementia Support Services
Basement Flat
Dene Holm House
Dene Holm Road
Northfleet
Kent
DA11 8JY
Tel: 01474 533990
Fax: 01474 325133
Web: www.alzheimers-dementia.org.uk

GP

As well as talking to your GP about general health matters, you should also talk to your GP if you feel you or the person you care for may be becoming depressed.

The GP has a number of options available to them for treating depression, these not only include medication, but also referral to services such as counselling.

It is best to have depression treated as soon as possible, as being depressed will make living with dementia more difficult: whether you have dementia yourself or are a carer.

Community Mental Health Team and Memory Clinics

People with dementia are likely to receive regular support from the Community Mental Health team. The team will visit people with mental health problems and dementia in their own homes to carry out assessments, and provide treatment, care and support. They can advise people with dementia and their carers on ways of coping, and ways of improving their health and quality of life.

The Community Mental Health team offers a standard assessment process, which ensures that all relevant aspects of your needs and circumstances are taken into account. Following this assessment and in discussion with you and your carer where appropriate, they will agree with you an individual plan of care.

The team aims to promote, maintain and improve mental health as well as alleviate any distress among you, our clients, who are the older people in the community. The team also aims to enable you to live your life fully and as independently as possible.

Further information can be found on the Kent and Medway Partnership Trust website.

National Helplines

Admiral Nurse DIRECT

Admiral Nursing DIRECT is a telephone helpline, provided by experienced Admiral Nurses and supported by the charity dementia UK.

It offers practical advice and emotional support to people affected by dementia.

What is an Admiral Nurse?

• Specialist mental health nurses work with families affected by dementia
• Working within the National Health Service, supported by dementia UK
• There are currently only 75 Admiral Nurses in the UK

You can call Admiral Nurse DIRECT on:

Tel: 0845 257 9406
Email: direct@dementiauk.org

Further contact details can be found by clicking on the links below for your area:

Dartford, Gravesham and Swanley Admiral Nurses
South West Kent Admiral Nurses
Maidstone Admiral Nurses
Medway Admiral Nurses
Dover Admiral Nurses
Canterbury Admiral Nurses
Thanet Admiral Nurses
Shepway Admiral Nurses
Ashford Admiral Nurses
Swale Admiral Nurses

Gay and Lesbian Carers Network Lesbian women and gay men caring for a partner, relative or friend with dementia face many challenges - not only those discussed on other pages of this site, but possibly many more.

Caring for a person with dementia can cause feelings of isolation. This can be exacerbated by people not understanding different lifestyles.

Alzheimer's Society's Lesbian, Gay, Bisexual & Transgender (LGBT)

Support group is a telephone support service for anyone who is lesbian, gay, bisexual or transgender and who is affected by any form of dementia - either by having dementia or as carer of, or a former carer of, someone with dementia.

For information about the LGBT Support Group please contact Alzheimer's Society Dementia Helpline on 0845 300 0336 (weekdays 8.30am to 6.30pm) or their contact details are:

Alzheimer's Society
Devon House
58 St Katharine's Way
London
E1W 1JX

The Alzheimer's Society Gay and Lesbian Carers Network is a telephone helpline service staffed by gay men and lesbian women. These trained and skilled volunteers are able to offer a listening ear.

Samaritans

Samaritans provides confidential emotional support, 24 hours a day for people who are experiencing feelings of distress or despair, including those which may lead to suicide. You don't have to be suicidal to call. Samaritans are there for you if you're worried about something, feel upset or confused, or you just want to talk to someone.

Tel.: 08457 90 90 90
Web.: www.samaritans.org

Samaritans also have local branches which you can
find online, or in the phone book.

Elder Abuse Helpline

Action on Elder Abuse provides a national, freephone helpline for anyone concerned in any way about the abuse of older people.

Elder abuse is defined by Action on Elder Abuse as: 'A single or repeated act or lack of appropriate action, occurring within any relationship where there is an expectation of trust, which causes harm or distress to an older person'.

Tel: 0808 808 8141 (Freephone helpline)
Open 10.00am to 4.30pm, Monday to Friday

Web: www.elderabuse.org.uk

The Relatives and Residents Association

The Relatives & Residents Association is a national organisation working to promote the well-being of older residents of care homes through:

Support & Information via the phone helpline 020 7359 8136
• Carrying out project work that focuses on specific issues
• Influencing policy and practice
• Working with local relatives & residents groups in care homes

More information is available on The Relatives & Residents Association website.

Helpline: 020 7359 8136
Web: www.relres.org

Alzheimer's Scotland

Alzheimer's Scotland also provide a helpline for carers (0808 808 3000) which operates 24 hours a day. Carers from England are welcome to telephone them.

Cruse

When somebody who has dementia dies the grief experienced by their families and friends can be a complicated thing. You may feel you had already lost parts of the person you loved. You may feel relief. You may feel guilt. It may be months later before it really sinks in that the person you loved has died.

Cruse Bereavement Care provides counselling and support to enable anyone bereaved by death to understand their grief and cope with their loss.

Day by Day helpline: 0870 167 1677
Young Person's helpline: freephone 0808 808 1677
Email: helpline@crusebereavementcare.org.uk
Web: www.crusebereavementcare.org.uk

Further Information and Factsheets

Voluntary organisations - this is an extremely helpful list of many different organisations who can provide all kinds of support and help, also includes links to their websites.

Carers - looking after yourself
Understanding and respecting the person with dementia
Depression
Feelings of guilt
Grief and bereavement
People's experiences of caring



Carewell


Carewell
is a comprehensive online resource containing information and support for carers including guidance on how to manage stress levels, getting a better quality night’s sleep, eating healthily and how to increase physical activity on a busy schedule. Plus, there's a forum to discuss, comment, contribute ideas and share top tips with other carers. Further information can be found by visiting the Carewell website.

For more information about using the DementiaWeb website go Help.


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Last updated: 14th May 2012

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